BIRD – its history, purpose and current activity The Bath Institute for Rheumatic Diseases (BIRD) was established in 1975 by the Royal National Hospital for Rheumatic Diseases (the ‘Min’) and the University of Bath and became a registered charity in 1981. It raises funds to support programmes of research and education into several rheumatic conditions, in particular inflammatory joint diseases such as rheumatoid arthritis (RA), psoriatic arthritis and ankylosing spondylitis. The main aim of the charity is to relieve sickness and to promote and advance medical knowledge with particular reference to rheumatic diseases. BIRD seeks to improve treatments for patients through promoting collaboration between clinicians and research scientists. Thus it provides a building with dedicated space and facilities for both clinical and laboratory-based research, and serves as a hub for research-active staff linking BIRD and the RNHRD, and for visiting doctors and scientists from the UK and overseas. It also organises educational programmes for doctors, health professionals, patients and the general public. Past achievements of BIRD include training of more than 25 PhD students, 20 clinical research fellows and 10 post-doctoral research assistants, many of whom now work in hospitals, academic institutions or the pharmaceutical industry in the UK and around the world. Research studies included disease mechanisms in RA, the biology of bone cells in osteoporosis and validating and optimising anti-TNF treatment for patients with RA, psoriatic arthritis and ankylosing spondylitis. Today, the Institute is an internationally recognised centre for characterising novel autoantibodies in patients with connective tissue diseases, in particular chronic muscle disease (myositis) in both adults and children. These studies are being carried out with support from the Myositis Support Group and involve active collaboration with a number of centres throughout Europe. In addition, BIRD is currently providing funds (1) to support a multi-centre international research project on Complex Regional Pain Syndrome and (2) to undertake a study of joint and muscle problems arising in young musicians. The latter involves collaboration with schools (Wells Blue School), colleges offering Music degrees (Bath Spa University, Falmouth University College) and a leading conservatoire (Guildhall School of Music, London). Much current research in BIRD is supported by an extensive biobank of over 30,000 samples and linked to clinical databases that underpin a range of biomarker and genetic studies of arthritis and connective tissue diseases. This resource is a key element in a developing research collaboration between BIRD, the RNHRD and the Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford. The Institute is managed by a Council of Management which meets quarterly, with day-to-day running in the hands of the Chair and a full-time Executive Director, supported by two part-time assistants. Core costs of some £125,000pa have to be met from unrestricted donations, legacies etc, from overheads on grants, charges from providing services to other charities and covenanted surplus from commercial activity (mostly laboratory tests) by our subsidiary Trading Company. Many of these sources of income are highly unpredictable from one year to the next. BIRD – its future vision and need for funds BIRD is committed to maintaining and promoting an independent research and education centre for bone and joint diseases in Bath following acquisition of the RNHRD by the Royal United Hospital. To achieve this, the Institute aims to enhance the value of its clinical and laboratory facilities through providing more support for research and, in particular, collaborative research studies that seek both to improve outcomes for patients and also to improve our understanding of the underlying disease. BIRD is seeking unrestricted sponsorship of its research and education programmes as follows: • Support for the continuing growth of the biobank and clinical databases to answer specific research questions, such as evaluating the long-term effectiveness of biological therapies for rheumatoid arthritis, psoriatic arthritis and ankylosing spondylitis. The very nature of the biobank and databases requires continuous support for sample and data handling and storage. Funding in this area is also essential to allow development of new research partnerships, and hence more funding opportunities, such as that underway with NDORMS in Oxford and with many European centres. • Research Training Awards to support the next generation of researchers and to ensure that bone and joint diseases remain a focus of medical research in the future. Rheumatic diseases remain a major cause of pain and suffering, and a considerable burden on the national economy through loss of work, etc. Cures for these conditions have yet to be found, although treatment of the associated symptoms has improved dramatically in recent year’s thanks in large measure to a better understanding of the underlying disease processes. Further research will lead to a greater range of effective treatments, and the opportunity to identify those factors that determine clinical responses and risk of toxicity in individual patients. Through its large groups of well-characterised patients, Bath can play an important role in these developments and offer a fertile environment for training young doctors and scientists in the future. • Funding to undertake further educational programmes aimed at GPs, physiotherapists and other health professionals, patients, their families and carers. From the above, it is clear that the management of patients with chronic inflammatory joint diseases is changing rapidly for the better, largely through the ‘appliance of science’. This generates an increased need for updating knowledge for doctors, nurses and other health professionals. It is also very important to support patients and their families, friends and carers in their discussions with medical staff by providing news and information on recent developments. Our series of Patient Information Days is very successful* in achieving the latter and needs continuing support. * A self-help group for patients with psoriatic arthritis (PsAZZ) was recently established as a direct result of discussions at a BIRD Patient Information Day.
The Burnham Beeches Rotary Club raises money for a variety of charitable purposes locally, nationally and international with an emphasis on supporting young people and donation to cancer care.
Yorkshire Cancer Centre is the fundraising arm of St Jamess Institute of Oncology in Leeds. Our ongoing appeal directly benefits cancer patients in this excellent modern facility which opened in 2008. The Centre provides a range of cancer services to a catchment community of more than 2.6m people across Yorkshire. The Appeals focus is four-stranded: specialist medical equipment, research and education programmes, patient home comforts and the arts and gardens projects. Your contribution, no matter how modest, will enhance patient care to make this world-class facility a leading force in the early prevention, diagnosis, treatment and after-care of this indiscriminate disease that still affects one in three lives in the UK.
Finley's Tracks is a new Charity set up in December 2014 which aim is to help all Manx sufferers of Duchenne Muscular Dystrophy. This is a devastating muscle wasting disease that starts taking effect at a young age, and rapidly develops leaving the sufferer in need of 24 hour care. We need a cure!
Leukaemia Busters is a UK-registered medical research charity with a huge vision – a world in which leukaemia is quickly, safely and completely cured. We work towards this vision by funding and conducting our own research into finding new and safer antibody-based treatments for currently incurable forms of leukaemia. We receive no government funding and rely wholly on public support. With your help we are bringing new hope to leukaemia patients, both children and adults alike, by fighting for their lives through research.
The Northern Counties Kidney Research Fund raises funds and awards grants in the North of England for research into all aspects of kidney disease and its treatment. The Fund was established in 1970 following an appeal through the Newcastle Evening Chronicle to help with building a kidney preservation machine. The Fund is entirely voluntary and has no paid administrators or fund-raisers.
The Rachel Foundation was set up to fund vital research into the causes of infertility. Our mission is to turn research into treatment to give couples the very best chance of becoming parents. "We made the donation to the Rachel Foundation because without the research foundation funds, we may never have had our precious son. After 13 unsuccessful attempts of IVF, we approached CARE in Nottingham. After just one cycle of IVF using the first ever CGH array procedure we achieved a pregnancy which resulted in our son being born, he is now 14 months old. We will be forever grateful to all the staff at CARE and hope the Rachel Foundation continues to fund more research into helping couples have children."
Supporting Families with children living with Cancer, through treatment and beyond, fund days out, holidays, dreams, hospital parking, petrol and other financial problems.
The charity provides help and support for those diagnosed with MND, their families and care givers. It runs a weekly drop in centre in Newcastle, regular social events and summer outings. The charity is run by volunteers and all funds are used helping those living with Motor Neurone Disease.
Action Against Cancer funds the development of cures for cancer at Imperial College, Hammersmith Hospital, led by world-renowned oncologist, Professor Justin Stebbing. The groundbreaking programmes that we fund focus on developing new diagnostics and treatments to improve the survival prospects and quality of life for millions of cancer sufferers worldwide.
Did you know that 16,000 people develop a brain tumour every year in the UK and it is the main cause of cancer deaths in children? Brain Tumour research is still in its infancy and grossly underfunded. Research in this area is significantly behind other cancer breakthroughs. This is where you can help by raising funds and increasing awareness so that, eventually, the number of deaths from this aggressive disease can be reduced. The Ethan Perkins Trust was set up by his parents in his name because they lost their son at just 11 years old to an aggressive Brain Tumour. He under went treatment and fought the tumour but sadly passed away only 8 months after diagnosis. Ethans Parents were shocked by the lack of support and funding into Brain Tumour research. The charity has been set up to make people aware of this, to support other children undergoing treatment and their families. With your help by increasing funding and awareness hopefully other parents will in the near future be able to say"There is Hope" and finally "There is a cure". Help us make a difference to children's lives today, tomorrow and give children a future! About TEPT - We provide grants and lasting experiences for children diagnosed with brain tumours who are receiving treatment. To date we have issued 80 children and their families with grants, which is organised via social care workers. They tell us what the child needs e.g. a family break or a comfort item e.g. toy, games console, camera etc and we supply the relevant funds from your events, donations and sponsorship. We aim to raise awareness for the urgent need for research into Brain Tumours and we raise vital funds for the development of this research. To date we have raised £15,000 that has gone directly to Brain Tumour Research via the Brain Tumour Charity. We rely solely on donations and the charity is run by friends and family who are all unpaid volunteers.
It was formed in 1971 to assist people who are about to undergo or have undergone surgery resulting in a urinary diversion, often following cancer. It has a full time secretary who provides information personally and via a Handbook, pamphlets, website, organising visits, Journal and DVD. Medical research also supported.
We are an Isle of Man based charity dedicated to raising funds for Robert Owen House, a b&b facility in the grounds of the Liverpool Heart & Chest Hospital where relatives and carers of patients there can stay in secure, friendly and close accommodation. Visit www.robertowenhouse.org for more.
The Association aims to help all sufferers of PMS by providing extensive information and support so that the condition can be successfully managed.It works with health professionals both to promote research and to help ensure that sufferers can access treatments appropriate to their needs.
Kidney Research UK is the largest funder in the United Kingdom dedicated to supporting research into kidney disease – a potentially fatal illness for which there is currently no cure.
Support group for people with glycogen storage diseases, very rare genetic disorders of metabolism, and their families. We offer: web site, newsletter, annual conference/workshops, promote understanding of and research into GSDs which are often disabling and life-limiting. http://www.agsd.org.uk
The Judi Meadows Memorial Fund exists to save lives threatened by suicide. The Fund aims to support new research, build awareness and share information amongst professionals and the general public. It also intends to influence policy and practice at a national and local level, and provide help to the individuals and families affected by depression. Further information is available at www.judimeadows.com.
Goals 4 Hearts is a non profit organisation that raises funds to purchase life saving defibrillators. The defibs that we purchase will be donated to schools, amateur sports grounds and other public places in the UK. First aid training is provided with each defibrillator by West Yorkshire Ambulance on our behalf. Our aim is to raise awareness of Sudden Cardiac Arrest as it's the UK's biggest killer and we want to make sure the protection and correct equipment is on hand when needed
An all volunteer lead, patient support group based in Newry with the area of benefit being all of UK and Ireland.12 monthly meetings, with specialist speakers, held in The Mourne Country Hotel, Newry on the FIRST Tuesday of every month. 7.00pm-9.15pmA warm welcome given to all patients, carers, family and friends. .
The Terral Morgan Memorial Fund provides funding for local people in Wirral diagnosed with cancer, regardless of age. The discretionary funding is intended make a significant difference to domestic arrangements through the provision of a stairlift and/or wheelchair ramps.
Amelia Matters is an organisation that helps to support children who suffer from Congenital Heart Disease (CHD). By educating, raising awareness and buying vital equipment for families to have at home, we hope to help children living with a CHD and their families.
All money raised by Heidi's Heroes will be donated to charities that help fight cancer; help the bereaved and teach children to swim - Heidi's lifelong passion.
CCLG funds, promotes and supports research into childhood cancer and is dedicated to supporting the work of those looking after children and teenagers with cancer. Click on the names below to visit our CCLG fundraiser pages: Team Jake Nick - 100 mile Cycle Jo-ann - London Marathon Ava's Pink Quest Stuart - 3 Marathons Academy Leasing Team Peppiatt Team Daisy Walk4Dais Jacqui - Team Daisy Snowden Team Daisy - Waxing event Haig-Thomas Expedition Lauren - Tanzania 400km Phuong - MCAS High Score Damien - Rock n Roll Marathon Beth & Claire - 10 Mile Kayaking Challenge Abdul - High Atlas Summit Trek Thomas - The Liege Bastogne Liege 2014 Sportive Jane - 'Russell-Steer' Cycle Bradley - Bosworth Half Marathon Ken - Tenby Sportive Bike Ride Rachel & Stephen - RideLondon Tandem Gary - Open Water Swim PriceWaterHouseCoopers - Spayne Lindsay Charity Challenge Suzanne - Personal Challenge Stephen - Ayr 2 Blair Cycle Lee - Oxford Half Marathon Adam - Total Warrior Click here to see even more of our current fundraisers' pages
Caring Matters Now has 3 main aims: 1. To support those affected by Congenital Melanocytic Naevi Syndrome (CMN). 2. To raise awareness about CMN Syndrome. 3. To raise funds for the CMN Syndrome medical research.
For Rutland in Rutland is a fundraising group of Rutland Citizens Advice. Its aim is to raise funds to benefit the Rutland community - its current priority is to support the Citizens Advice project to provide advice to people living with long term medical conditions such as cancer and dementia.