HDANI works throughout Northern Ireland providing support, information, advice and social connections to those living with the impact of Huntington’s Disease. We run regional support groups, provide telephone and face to face advice and support as well opportunities for families to connect through our events and befriending services. We also work closely with medical professionals to advocate for the most effective care for our clients and lobby the Executive for improved and efficient services. We provide training and awareness raising events and keep our members informed of the latest research and medical advances in the quest for effective treatments and ultimately a cure. The Association is dependent on a small but dedicated team of staff and volunteers who are committed to providing the best possible outcomes to our members.
With 4.2 million surgical operations carried out every year in England alone our aim to maintain and advance surgical standards in patient care has never been so important. Some operations are minor, while others are life-saving or will dramatically enhance the quality of life. In every case, the patient places their trust in the hands of the surgeon. As a registered charity (No 212808), independent of the NHS, the College relies heavily on charitable support to fund the development of these activities. Legacies and donations from grant-giving trusts, companies and individuals provide an essential source of income and allow us to fund important new projects and initiatives. The College continues to sustain and improve surgical standards throughout England, Wales and Northern Ireland. Our training, education and The College is very grateful to all of our charitable donors and sponsors, as without their continued support this work would not be possible.
The Cure and Action for Tay-Sachs (CATS) Foundation was created to raise awareness and support families affected by Tay-Sachs and Sandhoff. They are both terminal illnesses in children where those affected by the infantile form usually lose their battle against the disease by the age of 5.
Supporting local children with cancer. The Harry Johnson Trust was set up in memory of Harry Johnson. Harry lived near Shrewsbury and passed away in July 2014 aged 7 from a rare form of childhood cancer.Harry's Trust supports children and teenagers with cancer, who receive treatment and care from the children's oncology ward at The Princess Royal Hospital in Telford. These children live in Shropshire, Telford & Wrekin and Mid Wales. Charity No: 1159126 Find out more Website http://www.theharryjohnsontrust.co.uk Facebook https://www.facebook.com/The-Harry-Johnson-Trust-1501571373437290/ YouTube https://www.youtube.com/watch?vp_10xp-XK8g
Established in 1989 by families living with Huntington's Disease (HD), Scottish Huntington’s Association (SHA) is the only Scottish charity dedicated to providing medical support to those affected by HD. Huntington's Disease is a devastating genetic condition that slowly deteriorates brain cells,resulting in a loss of spatial coordination & mental awareness and eventually resulting in death. HD is a hereditary condition, meaning that it is passed on from parent to child, with children of those with the condition facing a 50:50 chance of inheriting the disease. Once symptoms set in, patients will require full-time medical care. There is currently no cure for the disease. SHA aims to tackle the inequalities faced by those within the HD community, ensuring that families are better connected to support and services. It is our aim to significantly improve the quality of life of everyone affected by this devastating condition and to increase awareness of HD through training and education.
All monies raised will help fund two Aberdeen projects. Firstly, to continue to support Breast Cancer Research/Services of Professor Heys at ARI and secondly to help Archway provide a range of social outings, activities and specialist equipment for children and adults with learning disabilities.
The Trust is set up in memory of Ben Williams who died suddenly aged 14 of a heart muscle disorder. It supports children with similar conditions, and their families, through funding a new specialist nursing post. It also supports youth cricket projects with a particular emphasis on wicketkeeping.
Children's Hearts aims to save lives of Russian children born with heart defects by raising funds to purchase equipment, train Russian surgeons and provide support materials.
Ryan Bresnahan, our son, died very suddenly on 31st March 2010 of Meningitis B, aged just 16. He was a fit, healthy, caring young man, full of personality and a sports scholar at Clifton College. We had no notice or even time to say goodbye – it all happened within an hour. a Life for a Cure’ was founded as both a legacy to Ryan and to help raise awareness and valuable funds in search for the ultimate vaccine. This is one of the most devastating and infectious diseases in the UK. 2014 has seen great progress, with the Government announcing in March that the Meningitis B vaccine, Bexsero, will be in the childhood immunisation schedule. Dates for it's introduction have not yet been finalised, but even when it is available, this vaccine will only be effective against about 70% of the strains of the disease so we must keep investing in research against the other strains. We are delighted to announce £315,000 has been raised to date. In addition to the pioneering project we have already funded at Sheffield University that has produced very positive results, a unique piece of research looking at the 30% gap in the recently discovered vaccine, started earlier this year at Imperial College, London. YOUR HELP IS VITAL in continuing to support this local Bristol charity which is operated purely on a voluntary basis, with all donations contributing to Ryan’s Appeal and the work we continue to do in association with Meningitis Now. We really, really appreciate all your help and support. To see more details go to http://www.ryanbresnahan.org/ 2014 is definitely the year for a new Challenge and in turn, help our fight against Meningitis. If you're doing your own personal event click here to create your page. To donate to this fantastic cause please click the button below:
It's shocking but did you know... Someone is diagnosed with blood cancer every 20 minutes in the UK... yes, that's 72 people a day that will receive that devastating news that they have a life threatening illness! It gets worse... Many of them will require a life saving stem cell transplant, without one they will not survive. But there's a big problem, there simply aren't enough stem cell donors on the register... as a consequence many people will die needlessly. At this time Anthony Nolan (The UK Stem Cell Registry) can only find donors for half the people that require one... 50% of patients and along with them their families and friends will have to stand by helplessly as the disease takes it's inevitable course. The situation is even more acute for minority patients, who make up a pitiful 4% of the UK registry. The real tragedy... It really doesn't have to be this way... medical advances make registration and donation extremely simple and straightforward with no lasting adverse implications for the donor whatsoever. Despite this donor numbers remain stubenly low. Of course patients still have many hurdles to get through even with a transplant, but at least with one they have a fighting chance. To date there has been too little done to address this issue. Rik Basra was one of those desperately ill patients, he had Leukaemia his search for a donor proved extremely problematic. Rik was on an finite timeline and doctors advised that his only hope was to to find someone already on the database...there was simply insuffient time to find a donor through a registration drive. Rik's situation was to say the least desperate, even moreso when a search of the UK database proved fruitless. It was a frightening time but also extremely frustrating. Frustration turned to determination and Rik started the campaign whilst in hospital to hopefully help others who may find themselves in the same situation. To cut a long story short, Rik had just two weeks left with his chemotherapy regime when miraculously a donor was found for him following an international search in Germany...it literally was at the 'eleventh hour'. Rik was extremely lucky, sadly there there are many, many others who are not... this is the driver for our work. We strive to give hope to desperatly ill patients and their families. So what do we do? Our ultimate aim is to get to a point where everyone, has a donor available to them at point of need. PLEASE HELP US DO MORE BY FUNDRAISING OR DONATING... THANK-YOU
London Freemasons help those who save lives to save lives Over £50,500 has been raised from various sponsored events. Some have been a group, some as individuals. Make your own page from here, and good luck. The MMC continue to raise funds for non masonic charities. Run from and by the Metropolitan Grand Lodge of London. Raising funds for Non Masonic London Based Charities. London Freemasons helping London Charities.
Megan Baker House provides life changing services for children and adults with motor impairments such as cerebral palsy, Parkinson's disease and stroke.
Free information emotional support and counselling for anyone affected by cancer, whether they are a patient, family, carer or friend. Drop-in Centre in Swansea, Telephone Help-lines, Counselling, Hospital and Home visits via our unique outreach service. Health education for groups. Operates throughout South West Wales.
We are affiliated with and supported by St Austell Brewery. Funds are primarily raised by the brewery's staff and customers to assist with good causes, principally in the company's main trading areas
CANtreat improves the treatment environment for cancer patients so that every treatment centre is a positive, welcoming place that fills the patient with all the strength and hope needed to fight their illness.
We are a small charity set up to help families in the local area who are in need of financial support following the loss of the family's main breadwinner to cancer. It is our mission to improve the quality of life for these families, confidentially, on a case by case basis.
It offers emotional support, practical help and information to the cancer community and carers throughout the north east. the organisation is volunteer led and most volunteers have first hand knowledge of cancer.
Daycare Trust campaigns for quality accessible, affordable childcare for all and raising the voices of children, parents and carers. It leads the national childcare campaign by producing high quality research and developing policy recommendations. It operates a online childcare information service which assists parents, carers, childcare providers and employers.
The Body Dysmorphic Disorder (BDD) Foundation aims to raise awareness of BDD and reduce the suffering experienced by those with BDD.
The Three Ells Trust was formed in 2000 and aims to make a difference to the lives of children with cancer and other life threatening or life limiting conditions and their families. We fund research into primary bone cancers and also assist hospitals to purchase medical and recreational equipment. Our current project is to fully fund a Paediatric Palliative Care Nurse for the local district attached to Kingfisher Ward, Dorchester Hospital to visit children in their own homes
We aim to provide support to those affected by inflammatory bowel disease; the main forms being Crohn's disease and Ulcerative Colitis. There is currently no cure for these debilitating conditions with over 620,000 people in the UK affected. Help us to raise awareness & support those in need!
Covering Solihull, Birmingham Heartlands and Good Hope hospital and the Birmingham Chest Clinic, the charity's aim is to raise funds for the benefit of its patients whether it is funding ground breaking technology or just a more comfortable chair, the patient is at the centre of everything we do.
Brainwaves supports people with brain tumours, their families, carers and friends to help alleviate their feelings of isolation and confusion. It aims to raise awareness of brain tumours, their devastating affects and to promote research and training to provide more effective treatments.
The Gillian Fabb Memorial Fund was set up following Gillan's death from liver cancer at the age of 8years. It aims to provide money for research into improved methods of diagnosis, treatment and prevention of cancer in children and has raised nearly £200 000. Money is raised in many ways with family and friends, especially Gillian's three sisters, playing a major role. Initially, all money went to The Institute of Child Health, attached to Great Ormond Street Hospital. Many pieces of equipment were purchased and important research programmes were financed. In 1995, the particular laboratory we had been supporting was closed but we became aware of a similar need for funds at The Dept. of Paediatric Oncology at The Royal Marsden Cancer Hospital. The Trustees visited the Unit in 1996, were impressed by the work being carried out and pledged our ongoing support for this research. We work hard to raise funds and are gratified to see how much progress has been made over the past 20 years. The labs have excellent links with other depts. at the Institute of Cancer Research and are working with them to develop new, more effective drugs, targeted specifically for childhood cancers, with far fewer side-effects than existing treatments. Apart from accidents, cancer, including leukaemia, is still the greatest killer of children today in the UK so we must not become complacent as we see improved recovery figures-with improved resources for research into diagnosis, treatment and prevention, the situation could improve still further. Every penny donated to the Fund goes to research-nothing is ever taken out for administration purposes.
Prostate Cymru, is the leading charity in the Principality working with medical professionals in the fight against all prostate diseases. Its mission is to raise awareness, promote understanding and fund both the latest medical equipment and the training of healthcare professionals.