(UK, 285399) Browse eventsFDUK is a UK based charity to help support sufferers of Familial Dysautonomia and their families. One of the charitys main aims is to raise awareness in the community of FD as well as educate and help those with the condition. However, the condition is very rare and the charity is small and based in North London meaning many people around the country are unaware of it. The fear that the charity has is that there maybe people with the condition that are being diagnosed incorrectly and not receiving the correct treatment. The condition Familial dysautonomia (FD, used to be known as Riley Day syndrome) is a disorder of the autonomic nervous system which affects the sensory, sympathetic and some parasympathetic neurons in the autonomic and sensory nervous system resulting in variable symptoms including: insensitivity to pain, inability to produce tears, development delay, frequent lung infection caused by reflux or poor swallowing and labile blood pressure (episodic hypertension and postural hypotension). The charity Familial Dysautonomia United Kingdom (FDUK) is a charity set up to help support sufferers of FD and their families. Formally known as DSGB, the charity strives to raise awareness of the condition in the community. Its aim is also to raise money to fund individual medical needs and requirements, as well as to pay for specialised doctors in the condition to come to London to hold clinics to assess the FD sufferers and guide UK doctors in their specialised expertise. The charity is always looking for ways to spread awareness or raise money to support the sufferers. If you are able to help with either of these, please contact the group admin and they will be able to direct you.
(UK, SC037445) Browse eventsThe “Kieran Mess Foundation” was set up in memory of our beloved son Kieran,Kieran was diagnosed with a benign brain tumour in 1999.During December 2005 Kieran’s health deteriorated,sadly he passed way on 10th Feb 2006 aged 10.We provide additional quality of life to children with Brain Tumours.
(UK, 1135974) Browse eventsFAN provides assistance and support in all aspects of dealing with Neuroblastoma. Our main objective is to help get UK children life saving treatment usually only available abroad at great expense. FAN also provides days out, wishes and holidays, campaigns for awareness and change, and more.
(UK, 1119061rf2) Browse eventsSUPPORT OUR TROOPS IN AFGHANISTAN - Wristband launch 14 July Wristbands are available to be posted now. Be aware there is a limited supply. However there are other ways to support 2 Rifles charity appeal, please visit http://www.swiftandbold.org/2rifles 2 RIFLES have deployed on operations in Afghanistan. Casualties are sadly part of the job. The 2 Rifles Swift and Bold wristband campaign provides funding for much needed immediate support and assistance for the families, girlfriends and boyfriends of the dead and wounded in those devastating first hours and days after a tragedy. To fund raise on behalf of the appeal, please use the link below, Thank you. To donate please click here In the medium and long term excess funds are used by the Rifles Regimental Trust to fund meaningful projects for the wounded and their families. Examples of this work can be found on www.careforcasualties.org.uk
(UK, 1156322) Browse eventsPatients diagnosed with acute leukaemia can often feel isolated and lonely and want to reach out. Despite the incredible support their families and friends bring, many desperately want to talk to someone, who, through their own experience, knows exactly what it is like to walk in their shoes, someone who has been where they, themselves, are now. The Bpositive Patient Support Group is a beacon of moral support for acute leukaemia patients, their families and their friends; a network of people who understand, through first-hand experience themselves, and are there to offer them support in any way they can.
(UK, 1115185) Browse eventsThe Richard Burns Foundation was created following the death of Richard Burns, the 2001 FIA World Rally Champion, from an astrocytoma, a form of brain tumour, in November 2005. The Foundation's mission is to create a nationwide network of brain buses in the UK with the Brain & Spine Foundation.
(UK, 1167720) Browse eventsShockingly, cancer takes the lives of more young people than all other diseases combined. Survival rates haven't improved for most childhood cancer types for over 40 years. We aim to change this by raising funds for research. 100% of your donations will fund research for all childhood cancer types.
(UK, 1109838) Browse eventsBreast Health International is a nonprofit foundation that serves as a catalyst to advance breast cancer research and treatment, working with the greatest minds throughout the world to find the cure and to eradicate breast cancer. Our mission is to give all people affected by breast cancer the tools necessary to have the best quality of life, regardless of background or financial circumstances. In addition to sponsoring a series of International Consensus Conferences, BHI is dedicated to developing the talents of a new generation of physicians through Breast Cancer Fellowships, advancing the scope of scientific research through seed grants to pioneering doctors, and making the lives of those with breast cancer a little easier with its Fund For Living. Our aim is to reduce the suffering caused by breast cancer worldwide and ensure that no one touched by breast cancer walks alone.
(UK, 802862) Browse eventsTo support Rheumatology Research in Cambridge To provide reliable and accessible information to Rheumatology patients To inform patients and their families/friends about local Rheumatology research To promote awareness of Rheumatological conditions among student doctors
(UK, SCO23039) Browse eventsBighearted Scotland was formed in 1994 when a group of charities decided to work together to raise vital funds for their individual causes. A donation to Bighearted Scotland works harder by helping a wide range of good causes including children and adults with a range of issues from epilepsy to special needs, exclusion, disability, cancer and mental ill health. We have grown to be the leading charity partnership in Scotland and to date we have raised over £1million to help thousands of children, young people and adults receive the best possible care and support they need to live happy and fulfilled lives. Bighearted Scotland is a consortium of 6 Scottish Charities; CLIC Sargent, Epilepsy Scotland, Erskine, Momentum, Penumbra and Scottish Spina Bifida Association. By supporting Bighearted Scotland you will be supporting 6 Scottish charities with one donation.
(UK, 1079504) Browse eventsAmyotrophic lateral sclerosis (ALS), or motor neurone disease (MND), is a muscle wasting condition that affects individuals and those who care for them across the world. ALS/MND progresses rapidly; average life expectancy is estimated to be 2-5 years. Currently, there is no known cause or cure. It is estimated that over 400,000 people are living with ALS/MND worldwide! To help people with the disease, groups of people have come together to form associations. The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS/MND associations from around the world. Our vision is to engage with our members, prospective members and other organisations to share resources globally, advance awareness and support people with ALS/MND worldwide.
(UK, Gift of Sight - N/A) Browse eventsThe Gift of Sight Appeal funds world-class research into the prevention and treatment of blindness. Principal areas of research are Age-related macular degeneration, the commonest cause of blindness in the Western world, Glaucoma and Nystagmus. X19140
(UK, 1155706) Browse eventsThank you for visiting our profile page on MyDonate. Para-Monte is a charity set up by the Savories in dedication to Adam. To raise awareness of altitude illnesses as well as highlighting safe travel to altitude.
(UK, 1128581) Browse eventsThe Thorne Mason Trust was founded by Mike and Debi Mason after Mike was diagnosed with a brain tumour in 2007. Following his diagnosis the couple decided to use their experiences to help other people in Pembrokeshire who are in any way affected by cancer and to fund research into brain tumours.
(UK, 1099455) Browse eventsFounded by Ex-Watchdog presenter and bowel cancer survivor Lynn Faulds Wood. We help to investigate every stage of the patient’s journey - from prevention and screening to palliative care - to help save lives from bowel cancer and to improve the quality of life of those going through the journey
(UK, X23617) Browse eventsBirkbeck is a world-class research and teaching institution, a vibrant centre of academic excellence and London's only specialist provider of evening higher education. We encourage applications from students without traditional qualifications and we have a wide range of programmes to suit every entry level. Our academic reputation also attracts many full-time postgraduate students. Recognised as a global elite university, Birkbeck is ranked 149 in the world in the Times Higher Education World University Rankings 2011. Over 90 per cent of Birkbeck academics are research-active and many are renowned experts in their fields. In the most recent Research Assessment Exercise (RAE 2008), Birkbeck ranked in the top 25 per cent of UK multi-faculty institutions. Birkbeck is recognised for providing the highest quality teaching that is informed by our outstanding research excellence. This is proven by our number one position in the National Student Surveys. 19,000 students study with us every year. They join a community that is as diverse and cosmopolitan as London’s population.
(UK, 509402) Browse eventsThe Chesterfield & District Kidney Patients Association tries to help the Satellite Renal Unit at Royal Hospital, Calow, Chesterfield and any patients at home on dialysis or CAPD. We are also here to help transplant patients in the area. The unit at Calow has 12 beds and is very well looked after by the Sheffield Kidney Institute at the Northern General Hospital. Our association is run by kidney patients, carers and friends who want to help make a difference. We are a small group who try to be there when needed.
(UK, 298098) Browse eventsThe British Neurological Research Trust is dedicated to supporting the research of the Spinal Repair Unit, Institute of Neurology, towards the repair of injury in the central nervous system. This research is focused on the translation of newly discovered science for human clinical benefit.
(UK, 1105330) Browse eventsMedical Assistance Sierra Leone was established in 2003 with the aim of supporting access to health care and urgent medical treatment for communities and individuals in Sierra Leone. Sierra Leone is the poorest country in the world (UNDP 2004), with high infant mortality and globally the worst maternal mortality rates. Sierra Leone's health infrastructure clearly requires support at all levels. However there are specific strategic areas where an input of resources can be expected to begin to save lives, improve health and well-being and better enable individuals to meet the vast development challenges facing their families and communities. MASL focuses on three areas of work longterm: Reducing maternal mortality. About 2% of women die in childbirth, largely due to lack of services to manage emergency obstetric care, harmful traditional practices, inadequately trained staff, a weak referral system and high hospital-patient costs. Reducing child mortality. A study by the government and UNICEF revealed that 1 out of 4 children die before their fifth birthday. Children are dying from easily treatable illnesses like malaria, which accounts for up to 65% of such deaths, diarrohea, measles and complications associated with malnutrition. Low cost, well-targeted interventions can save lives. Facilitating access to treatment for those with rare and specialist medical conditions, who face no prospect of getting treatment in Sierra Leone. Currently this includes support to spinal surgery patients, developing the first epilepsy service in Sierra Leone with UK consultants and plastic surgery support to burns patients. MASL works with others to raise awareness of the key health and development issues facing communities in Sierra Leone - and to generate interest and support in meeting the health needs of the country. We have virtually no UK overheads and employ one Coordinator in Sierra Leone, who liaises with and supports local partners and carries out a monitoring and evaluation function.
(UK, 1147939) Browse eventsWe are OG Cancer Project, a charity set up in 2012 and run by patients for the welfare and support of Oesophageal and Gastric cancer patient and their families. Our trustees are a unique blend of 5 patients, 2 consultants and our very own angel disguised as a Clinical Nurse Specialist, this mix ensures we are at the front line and have resources in people to offer support pre, during and post treatment for patients and their families. Everyone involved with the charity are volunteers and our administrative costs are minimal to ensure the maximum funds are used for our aims as below. The charity’s aims are: To provide welfare and advice to patients and carers, To provide support by establishing, running and maintaining patient support groups, and by new patients being able to have contact with experienced patients pre, during and post treatment, To raise awareness to ensure early diagnosis, To assist with research funding of OG cancer, To fund equipment and other items that directly benefits patients and which are not normally provided by other sources, To raise funds in order to achieve our aims. We work closely with the Regional OG Unit based at the Royal Surrey County Hospital, Guildford and we have full support from the OG clinical specialist team of consultants, nurses and dieticians. The Guildford OG patient support group was started up in 2007 and now meets monthly, we welcome patients and their families to attend at any meeting. The group has full support from the clinical team who attend meetings and often do a presentation to the group. Web site: www.ogcancerproject.org.uk E-mail: [email protected] E-mail: [email protected] E-mail: [email protected] Tel: 01483 406688 or 01243 855611 Mobile: 07734 394263