The Myotubular Trust is the only charity in Europe raising research funds towards a cure or treatment for myotubular myopathy, a devastating muscle weakness affecting babies from birth.
CDKL5 is a rare genetic condition that mainly affects females, and was only recognised as a distinct entity in 2012. There are thought to be about 50 children and adults with a diagnosis of CDKL5 in the UK. We are a UK charity aiming to support affected families and to raise funds for research
We are the only charity supporting the work of St. Mark’s Hospital in Harrow, the world's first specialist bowel hospital. The money we raise funds vital research, education and training, as we fight to eliminate all categories of bowel disease.
Dan's Fund For Burns is a registered burns charity, set up after the terror attack in Bali in October 2002. The fund aims to help burns victims, units and other burns causes e.g. burns camps and conferences in the UK.
Support group for people with glycogen storage diseases, very rare genetic disorders of metabolism, and their families. We offer: web site, newsletter, annual conference/workshops, promote understanding of and research into GSDs which are often disabling and life-limiting. http://www.agsd.org.uk
Making a difference to patients and staff at the Yorkshire Heart Centre at Leeds General Infirmary A message from the Chairman Take Heart was founded in 1989 and since then has raised over three million pounds to fund both major and minor projects. We are committed to giving care and comfort to patients and their families at the Yorkshire Heart Centre at Leeds General Infirmary and St James Hospital and its Units within the Leeds Teaching Hospitals NHS Trust. We endeavour to ensure that patients and their families enjoy the very best of comfort within the Yorkshire Heart Centre at what can be a very stressful time. The charity is run entirely on a voluntary basis,so the vast majority of funds go directly to the projects for which they are intended. If you can help us continue our work, we would be more than grateful. Why not join us for a one time membership fee of £1.50? Details on our website at www.takeheart.net. Thanks for reading. Colin Pullan, MBE
AgeCare is dedicated to the care and wellbeing of older people who are frail or suffering from dementia, promoting and researching best practice in residential and nursing care in its homes. The AgeCare Awards scheme offers nurses and carers throughout the profession a structured training scheme with nationally recognised qualifications.
Wings for Life is dedicated to finding a cure for spinal cord injury and funds world class scientific research & clinical trials aimed at accelerating progress towards this. 100% of your donation goes directly to research as the charity’s founders cover all administrative costs.
The Northern Counties Kidney Research Fund raises funds and awards grants in the North of England for research into all aspects of kidney disease and its treatment. The Fund was established in 1970 following an appeal through the Newcastle Evening Chronicle to help with building a kidney preservation machine. The Fund is entirely voluntary and has no paid administrators or fund-raisers.
CRIS Cancer Foundation is an independent non-profit organisation dedicated to the promotion and development of research to eliminate cancer. We believe that science is the only weapon that can beat cancer. CRIS Cancer Foundation focuses on the types of cancer that have fewer resources or more difficulty in obtaining financing. By funding research in the scientific community we believe that we can make a notable improvement in the understanding of the biological mechanisms of cancer. We are hopeful that this will allow us to develop new medicines and treatment plans capable of overcoming this fatal disease, so that it can be managed and ultimately eliminated. CRIS Cancer Objectives: Invest in cutting edge cancer research projects Fund research for rare and underfunded forms of cancer Fund translational projects to get new REAL treatments Share research findings CRIS Cancer Foundation is currently funding three research projects. One translational haematological research unit in 12 Octubre hospital in Madrid, and two paediatric oncology project, one guidebook giving recommendations for child pain management to help in their treatment whilst suffering from cancer. The final research project is research in Natural Killer Cell therapy in child oncology cases.
Paul's Cancer Support Centre based in Battersea provides information and support, complementary therapies, groups and courses for anyone affected by cancer.
Sturge Weber UK is a volunteer run support group for families and adult sufferers affected by Sturge-Weber syndrome, a rare neurological disorder. A registered charity, it was launched in 1990 as a independent group by the disability support organisation Contact a Family. www.sturgeweber.org.uk
It is the official registered charity for the Lincolnshire PCT and the Lincolnshire Partnership NHS Foundation Trust. It benefits the patients and staff of both Trusts by funding enhancements to the services and facilities.
Fanconi Hope is a charity set up to sponsor research and support those affected by the rare genetic disorder Fanconi Anaemia that affects children and adults, leading to bone marrow failure and bone marrow transplantation, with very high risk of leukaemia and head and neck cancers.
Our aim is to provide support to parents and give them opportunities to meet other families living with Down’s Syndrome. We are a great source of local and general information regarding Down’s Syndrome and we hope to raise awareness and understanding in the local community. We hold monthly meetings on the first Saturday of the month at Whitewell Bottom Community Centre and we have a full range of outdoor and indoor activities for the kids (and adults!). Yakety Yak is our weekly speech and language service for children with Down's Syndrome. DSE international's research shows that learning to talk is a particular challenge for children with Down syndrome - more so than many other areas of development. Difficulties communicating present obstacles in daily life and can be a major source of frustration. ELDSSG through Yakety Yak are hoping to help develop these skills as far as possible
It provides research into and treatment for incurable Genetic Diseases in children and has provided a laboratory and many expensive items of equipment in helping to better the lives of dying children. One day it will help FIND A CURE!!
We are Lumos, the charity founded and chaired by J. K. Rowling. Taking children from their families and raising them in institutions harms their health and development. Lumos works so 8 million children in institutions worldwide can regain a family life.
Plymouth & Cornwall Cancer Fund is a local charity which supports local people affected by cancer and the establishments that provide treatment and care. We do this through hardship grants, funding research projects and equipment, training & education, and supporting complimentary staffing posts
Felix Fund supports bomb disposal experts and their families. We fund therapeutic breaks for bomb disposal teams returning from Afghanistan and other welfare and rehabilitation facilities for EOD units. We also provide hardship grants for individual members of ‘the bomb disposal family’ in need.
The charity raises funds for breast cancer services at Princess Alexandra hospital, Harlow and Princess Margaret hospital, Epping and aims to offer respite care for patients undergoing or finishing treatment.