Envisioned by a few dedicated people, the Inflammatory Breast Cancer Research Foundation was incorporated in 1999 with the goal, "Committed to Finding the Cause". Little did we know how tough that was going to be. Through the
Kathleen A. Casey and her son Barrett “Bear” Krupa with the help of Bear’s grandfather, William Casey and a small band of dedicated volunteers founded Bear Necessities Pediatric Cancer Foundation in late 1992. Bear fought a cour
An estimated 24 Million Americans suffer from one or more of over 80 Autoimmune Diseases...all we really need is 1 Cure. According to the National Institutes of Health, these diseases "occur as a result of the immune system attacking the body’s own
In 1977, a young local woman named Caroline Sue Quann died of cancer at the age of 31. Determined to honor her wishes to be at home for her final days, her friends rallied around her with medical care and abiding love to mak
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll do
By the time Cole had turned two, he had been through more than most people experience in a lifetime, including numerous surgeries to correct a seizure disorder and remove a tumor in his left temporal lobe. Make-A-Wish® helped to bring joy
The Lupus Foundation of America, Heartland Chapter is dedicated to improving the quality of life for people affected by lupus through programs of research, education, support and advocacy.
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scro
The FOD Family Support Group is an all volunteer family-based 501c3 Nonprofit Corporation. All services are free of charge. Our Mission is... ● to network with FOD Families & Professionals around the world and to provide emotional/grief support services to the Families (and in the local East Lansing, MI area - www.bereavedparent.com), info about living with these rare genetic metabolic disorders, and Updates to inform families of new developments in screening, diagnosis, research and treatment. We offer a National Conference every 2 years and very active online groups on google groups and Facebook that network Families & Professionals from around the world. ● to create awareness about FODs, to educate the public, and to advocate expanded universal and comprehensive newborn screening & long-term follow-up treatment for FODs and other related metabolic disorders. ● to raise funds for the clinical training of Physicians and promoting research investigation into expanded newborn screening, diagnosis, effective treatment options, and/or cures for the various FODs; and to distribute this info to our family population and funds to clinicians and researchers involved with families affected by Fatty Oxidation Disorders.