Do you have a friend who once would have been running in the London Marathon, but now finds it difficult to slowly walk to the end of the street? This is what happens to people who are often in their mid-20’s with neuroacanthocytosis. They have the bad luck to inherit mutated genes that slowly cause the brain cells that control movement to die. Bewilderment is their first response: “Why am I always stumbling?” “Why do I uncontrollably bite my tongue?” “Why can’t I live on my own any longer?” When the diagnosis finally comes they ask “What can I do. Who will help?” When this happened to our daughter, friends immediately asked “Can we help?” and the Advocacy for Neuroacanthocytosis Patients began. We now are a world-wide alliance of clinicians , scientists and patients searching together for he mechanisms that cause brain cell death. We part of the many working on the same problem as it relates to neurodegeneration in Parkinson’s, Huntington’s and Alzheimer’s. We and they are now moving to understand the small structural anomalies that may cause brain cell death. University clinics and labs do the work. Our job is to engage excellent scientists with the important questions through our international symposia and to find the money to support their investigations. The alliances success is measured by the support from American and European grant agencies and the discoveries that have been announced in academics papers. We have 7 new applications for important grants. The Virgin team runners and your generosity will make this work run much faster. Thanks for YOUR help! www.naadvocacy.org
Help a Guernsey Child was established on 12th January 2001 by Island FM to raise funds for deserving children in the Bailiwick of Guernsey. We actively seek to assist disadvantaged local children, young people and youth organisations, and can also meet some specific individual needs.
The person who created this page is probably preparing something riveting to post about everything they're doing to give back. We recommend you sit at your computer and hit refresh over and over until their story goes live. You should also scroll do
WayAhead -Mental Health Association NSW is a non-government organisation actively working in mental health for the NSW community for over 80 years. Our mission is to work in partnership with others to address stigma and promote mental health and wellbeing through education, support and advocacy. WayAhead offer information, support and referrals to people with a mental illness, their families and carers though our information lines or through our WayAhead directory. We coordinate a number of support groups and self-help groups for people experiencing Anxiety as well as coordinate unique health promotion campaigns and projects, including Mental Health Month in October and the Workplace Health Promotion Network.
EDHS P&C is the forum for the parents & carers of Exmouth District High School to participate in and be directly involved in the school community, ultimately benefiting their children’s learning environment and education. All P&C’s are established under the School Education Act, 1999 for the purpose of supporting a strong government school system for the benefit of all students. EDHS P&C is supported by the School Principal and is governed by the West Australian Council of State School’s Organisation Inc (WACSSO) who manages the P&C insurances and provides ongoing support for the team of volunteers who run our P&C.
We recognize that maintaining a top-notch public school system is essential to our community and to our future. We believe our students deserve the best. We also realize that school districts like ours are finding it increasingly difficu
The London Triathlon is aiming to raise over £1 million from the 2007 event and your support will help us reach this target. The London Triathlon's Gold Charities for 2007 are Leukaemia Research and DeBRA