The 1p36 Family Trust, is set up to support and educate families affected by the rare chromosomal disorder, 1p36 deletion syndrome, that affects 1:5000/10,000 births, it causes developmental delays, heart conditions and seizures.
The Histiocytosis Association is a global nonprofit organization dedicated to addressing the unique needs of patients and families dealing with the effects of histiocytic disorders while leading the search for a cure. It is the only organization of its kind, connecting the patient and medical communities to: 1. Grow and share knowledge of histiocytic disorders 2. Provide critical emotional and educational support to patients and families. 3. Identify and fund key research initiatives that will lead to a world free of histiocytic disorders. We are dedicated to raising awareness about histiocytic disorders, providing educational and emotional support, and funding research leading to better treatments and a cure.
Controlling Chemsex is a charity created and run by professionals with long experience providing Chemsex support, many of whom have struggled with Chemsex in the past themselves. We are here to provide a new kind of Chemsex intervention to reinforce the support that is currently available, using new technologies to facilitate access to support for everybody, in order to make things as easy as possible for people who find it really difficult to access support, and respecting the fact that confidentiality is highly important for them.