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PROGRAMME D'ENCADREMENT CLINIQUE ET D'HEBERGEMENT P E C H (CA, 137131793RR0001) Browse events
YTD Raised: n/a
Long Covid SOS
(UK, 1199120) Browse events
YTD Raised: £0.00
(UK, 1199120) We sent out our first SOS in July 2022 and it was answered by the NHS and the WHO among others. We are now throwing a lifeline to all those who are living with the debilitating impact of Covid-19: Long Covid Recognition: We promote recognition and understanding, and use our voice to emphasise the importance of supporting people with Long Covid by working closely with government departments and ministers, institutions including the NHS, NIHR, ONS and NICE and international bodies such as the WHO. Research: We campaign for research into Long Covid, carry out our own surveys, and collaborate with researchers, including and promoting the voice of those with lived experience in a number of publicly-funded research projects. We advocate for appropriate, inclusive and relevant research and have representation on expert panels informing research priorities. Rehabilitation: We have had an ongoing dialogue with NHS England since August 2020, with regular meetings and updates to share information. We have been members of the Long Covid National Taskforce since its inception and have provided vital data through several surveys and reports.