The FOD Family Support Group is an all volunteer family-based 501c3 Nonprofit Corporation. All services are free of charge. Our Mission is... ● to network with FOD Families & Professionals around the world and to provide emotional/grief support services to the Families (and in the local East Lansing, MI area - www.bereavedparent.com), info about living with these rare genetic metabolic disorders, and Updates to inform families of new developments in screening, diagnosis, research and treatment. We offer a National Conference every 2 years and very active online groups on google groups and Facebook that network Families & Professionals from around the world. ● to create awareness about FODs, to educate the public, and to advocate expanded universal and comprehensive newborn screening & long-term follow-up treatment for FODs and other related metabolic disorders. ● to raise funds for the clinical training of Physicians and promoting research investigation into expanded newborn screening, diagnosis, effective treatment options, and/or cures for the various FODs; and to distribute this info to our family population and funds to clinicians and researchers involved with families affected by Fatty Oxidation Disorders.
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